Word Mental Health Day

October 10th is World Mental Health Day. I talk a lot about mental health on my blog. I have been affected by mental illness since I was a teenager. Growing up, my parents were very open about mental health and, having experienced anxiety and depression first hand, were able to recognize when I started exhibiting signs of anxiety and depression when I was around fifteen years old.

I have come to realize that not everyone grows up in an environment where mental health is talked about in a very open and honest way. There are many people out there who have no idea that they are not alone in feelings of sadness, or fear or hopelessness. People who have no idea that there is a whole network of people out there dedicated to helping those with mental health issues and getting them to a place where they can enjoy their lives again. Today is about shedding light on mental health and ending the stigma that seeking help for your mental health issues is something to be ashamed of.

One thing I have noticed that concerns me is the trend of “pill shaming”. The idea that there is something wrong with people if they are taking medication to help manage their mental health. If you had a physical illness and there was a medication available to you that would make you feel better would you stop for one second to wonder “what will people think if I take this medication?”…nope! You would take the meds, and get better! So there is no shame in seeking help from a medical professional if you suspect that you are struggling from anxiety or depression. They are there to help you, and they can help.

Now, I am not saying that there is a magical pill out there that will just cure your anxiety or your depression. There are many tools that I have added to my proverbial tool belt to help me combat my anxiety problems. To name a few; Meditation, Self Care, Writing (my personal writing as well as blogging), Eating Healthy, Counseling, Regular Exercise

One of the techniques that has helped me the most, not just during panic attacks, but also during physical discomfort from MS, illness, etc. is meditation.

I was recently watching an episode of “In Search Of” hosted by Zachary Quinto and they were searching for the answers to how some people are able to exhibit super human strength or feats during periods of meditation.

He was specifically looking at a Shaolin warrior monk who through meditation, is able to complete tasks that would usually leave a human seriously injured. However this monk walks away with not even a scratch to be seen. For example, in this episode the Shaolin warrior monk breaks a wooden staff* over his head. He never loses consciousness, finches, and claims to feel no pain whatsoever!

*** No matter how good you are at meditation I am NOT recommending you do this…unless you are a Shaolin warrior monk…then I guess go ahead.

In search of (haha get it?) an answer as to how this monk is able to endure these superhuman feats Zachary, the monk, and one other person conduct an experiment where they took two MRI scans of their brains. The first scan was a regular scan, but during the second scan the men were asked to put their hand in extremely cold ice water. They were specifically looking for the area of the brain that recognizes pain to light up.

As suspected, when Zachary Quinto put his hand into the ice water his scan showed the pain receptor area of his brain lighting up like a Christmas tree. But when the monk did this same test, while meditating and centering himself into a place a of tranquility, his scan showed extremely limited activity in the pain receptor area of the brain!

Even more interesting, Zachary went into the MRI machine one more time to test just how successful he could be at lowering his pain level through meditation. His scan, while meditating, noted a significant decrease in activity in the pain center of the brain.

Even the doctor who was helping them conduct this tests were baffled at how affective meditation was at physically changing the way our bodies received and reacted to pain!

I have not been feeling great with a stomach bug the past few days and I have found meditation extremely helpful to help ease my discomfort. Sometimes, if your discomfort is too high to even concentrate on a full meditation even just focusing on your breathing can help. “In…two…three…four…out…two…three…for”. That phrase has gotten me through many a tough moment over the past year.

So today if you are struggling with a battle against mental illness, or if you know someone who is, let us all remember that there is always hope, there is always light, and there is an army of people around you (including me!) that are cheering you on and supporting you every step of your journey!

Let’s share some positive vibes today.

-A

 

 

 

5 Facts About My Anxiety

Anxiety is the most common mental illness in the United States. It affects over 40 million adults a year just in the U.S. alone.

The sad part is that well under 50% of people with anxiety seek treatment for it.

Anxiety is very different from simply feeling anxious. Everyone feels anxious at times in their life. It is completely normal and healthy to feel anxious before a big test, a job interview or airplane flight. Anxiety is your body’s way of taking care of you. It’s way of saying “Hey! This could be “dangerous”. We should be careful!” It’s a primal instinct that we all use to this day. The issue arises when you cannot shut off that anxious feeling after the test is over and the flight has landed long ago. It becomes an issue when day-to-day things like making a phone call or riding in a car send you into a panic attack. It becomes an issue when you are no longer in control of your life, anxiety is.

There are different types of anxiety disorders. Generalized Anxiety Disorder (GAD), Panic Attack Disorder, and Social Anxiety are just a few of the most common.

There is a sort of taboo around mental illness. I do think that our society has made some very positive steps forward regarding shining a light on mental health issues and taking away some of the stigma around it. We need to talk about it. We cannot ignore our mental health any longer.

I remember, way back in my freshman year of high school, a classmate of mine confided in me that she was going to kill herself that night. She made me promise not to tell anyone and said she would hate me forever if I did.

I confided in my best friend and we were so scared for this girl that we knew we couldn’t keep this secret. We told the crisis help group at our high school. The next class period the classmate who had confided in me was taken out of the classroom by a counselor. She did not kill herself, but she did keep her promise to hate me from that point forward.

I was absolutely wracked with guilt. I felt like I had broken someone’s trust and done something wrong. I recall talking to a priest about it at one point soon after. He said something that has stuck with me my whole life. He said;

“There is nothing bad about what you did. Evil thrives in darkness. What you did was shine a light on it so it could not thrive anymore. Sometimes shining a light is all you can do.”

So I have continued to try to shine a light on mental illness. For too long it has thrived in the darkness, hidden in the shadows and only spoken about in hushed tones. Well, times up. Not anymore.

1. My anxiety makes me physically ill. Anxiety doesn’t always manifest in the “classic” way that one would think it would. For me my symptoms of anxiety can range from trouble breathing, shaking, shivering, flushing, nausea, headaches, vomiting, inability to focus, panic attacks and more.
2. My anxiety makes me flakey. This is something I really do not like about my anxiety. I absolutely hate that there is a fear inside me that is powerful enough to make me want to cancel on things I want to do. I have been working on this a lot lately. Having a chronic illness, I am constantly having to check in with myself to see if my symptoms are from MS or Anxiety. I can usually tell, it’s funny, I can actually tell the difference between an anxiety stomach ache and an actual stomach flu stomach ache. When I feel sick from it I try to acknowledge to myself that what I am feeling is anxiety and that is OK. Acknowledging it is half the battle.
3. My anxiety makes me lash out. I am not proud of this. Sometimes I will not even realize that my anxiety is bubbling up inside me, coming dangerously close to boiling over. Then someone will ask an innocent question, or my dog will bark to try to get my attention and I will snap and say something with a sharp tone, or make some snarky response. I immediately feel guilt and know that I am not really angry at that person, or mad at my dog. I am anxious and, like a wounded animal trapped in a corner, I have lashed out. Then, I have to remind myself that I can leave that corner whenever I want to. Anxiety is not in control of my actions, I am. 
4. I see two doctors, take 4 medications and meditate daily to help manage my anxiety. I cannot emphasize enough how important my mental health care team has been to me. They have helped me navigate and understand my illness. They have given me coping strategies and techniques to help me during panic attacks. They have made me realize I am not at all alone in this fight. My psychiatrist has helped me navigate that difficult world of finding the right medications for my body chemistry to help me find balance. If you suffer from a mental illness and have not talked to someone about it please reach out to your local crisis hotline. They can help direct you to a licensed therapist or psychiatrist in your area to get you the help you need. You do not have to fight this alone. You are not alone!
5. I am not ashamed of my anxiety. Yes, it is a part of my life (sometimes a very big part) but it does not define me. I talk about my anxiety so publicly because I know there are people out there, silently suffering, and they need to know that there is nothing to be ashamed of. They need to know that there is a rainbow at the end of the storm. They need to know that help is out there, all you have to do is ask.

Please, reach out to your loved ones. Check in with them and make sure they are doing ok. If you are feeling anxious or depressed or just “off” tell someone! If you don’t feel like you have someone you can tell, reach out to your local crisis hotline.

You are not alone. You are worth it. You are stronger than you know. Together we can shine a light on mental illness and help each other find the help that we need! Stand strong, warrior.

-A

 

The brain is quite amazing…

So my brain feels a bit all over the place today so please pardon if this post seems a little scattered.

This morning I had my appointment with my Neurologist. My husband and I knew that we were going in at this point to discuss treatment options, as my recent MRI had given definitive proof of Relapsing Remitting Multiple Sclerosis. No more CIS for this gal! So we did our research.

Anyone who know’s my husband knows that when he starts a project or gets his mind set on something there isn’t a thing in this world that could stop him. So, he went into research overdrive and scoured, I am fairly certain, every nook and cranny of the National Multiple Sclerosis Society’s database for every FDA approved treatment option out there. Then cross referenced it with whether or not they interacted with my current medications, whether they were ruled out because I was exposed to JC Virus (some MS medications can cause brain disease if you have been previously exposed to this virus), and researched the side affects, effectiveness, and risks of each one. He’s amazing. I hope that every person with a chronic illness is as lucky as I am to have the amazing support and love that I do.

We knew we were going into this with a few major concerns. I wanted a drug that was low risk for birth defects as my husband and I start our married lives together we know that someday (a serious someday people) we want to have kids. So, I didn’t want anything that could cause permanent damage to that whole scenario. I also felt pretty strongly that I wanted the benefits to heavily outweigh the risks. I know that these “safer” treatment options are sometimes less effective, but I don’t want anything that is going to make me more sick that I already am. I don’t know if that’s even a realistic thing, or if it makes sense. But Copaxone seemed like the closest fit for me.

I am nervous to start the treatment, but luckily this drug doesn’t have too many side effects. I just have to get used to injecting myself. But that will come with time. I’m not super afraid of the pain, I can handle that (I have a full side tattoo, so I would hope so at least). So that is where my MS journey is at right now.

I’ve been thinking a lot about mindfulness lately and living in the present moment, really connecting to it. I did a great guided meditation last night before bed and something that the instructor spoke about that really stuck with me was how small a part we are in such a HUGE universe of being. It reminded that all of us are connected. We are connected to the people and energy in our homes, neighborhood, city, state or province, country, continent, the world, the universe, the cosmos. The magnitude of it is almost incomprehensible to the human mind. All of these things are existing and working in perfect harmony to keep us alive and our ecosystem thriving.

When I saw my images from my MRI today I couldn’t help but think of that meditation. Even inside our bodies is this crazy complex system that all works in harmony to keep us alive. And even though the neurologist was showing me the parts of my body that were sick, I could also see all the parts that were strong and working and beautiful. Seriously, if you’ve ever seen an image of the inside of your own body from pelvis to the top of the head you would think it was beautiful too! It just reminded me that although I may be sick, my body and mind are still strong in many other ways. Even though part of my body get’s confused and attacks itself, a bigger part of it works in a cohesive way together… in harmony, every moment of the day to keep me alive. It made me feel grateful towards my body for the first time in a while.

She’s amazing 😉

P.S. Special shout out, again, to the sparrow mom who is now glaring at me from inside my basket of African Daisy’s. Like..I’m sorry you chose to build your nest in my happy place. We gonna hafta share, girl.

-A

The waiting game.

Multiple Sclerosis has already taught me a few things. Things like:

It’s OK to be tired and need to take a rest. No shame in napping!

It’s OK not to be able to do the things I used to do (like have the full-time job that I loved, even though I might have complained about it while I was working, I never realized how much I would miss my company, work and coworkers until I had to leave)

When I need to go to the bathroom I need to go NOW (come on, I have to be able to laugh about this one, right?)

But a big thing I am learning from MS is to be patient and to live in the present rather than worrying about the future. This is something I am still learning, and expect I will continue to learn through the rest of my life. Mindfulness and being present in the now is something I have worked on in the past with meditation but it has never been more relevant or necessary in my life. With this disease there is no way to predict the future. There are no two patients with MS that have the exact same symptoms. It all depends on where the lesions develop in the brain and spinal cord, what stage of the disease you are at, how your body reacts the treatments and medications. There are SO many things we don’t know about this disease (let alone why/how people even get it).

So I am learning…(let’s be honest, mostly struggling) with just letting go of the “what if’s”. You can’t spend your whole life worrying about the “what if’s” especially if you have a disease as unpredictable as MS. This is a really hard thing for me because anxiety LOVES “what if’s”! What if I progress fast? What if I lose my sight? What if I can’t be the mom I want to be in the future? What if? What if? What if? What if? Sometimes I just need to take a step back – look my anxiety straight in her bossy little face and say “Shut.Up!”.

This is my life and I am learning that I get to control it my anxiety DOES NOT.

So, as I sit here on the deck in the probably too cold to be outside but I am doing it anyways because… Minnesota, weather and write this blog I am actively telling my anxiety to be quiet and to just enjoy this moment. I had an MRI yesterday and will have to wait until Monday morning to meet with my Neurologist and get the results and that is all my brain wants to think of. But what is the point in worrying about something that is going to be the same no matter how much thought I put into it this weekend? Me worrying all weekend is not going to magically make the lesions disappear or my symptoms go away! So as my therapist always says “Why suffer twice?” anxiety makes you suffer before you’re actually in the situation you are worrying about.

So I am making a choice today. I will not worry all weekend about the results of my MRI. What will come will come and I will be strong either way!

So for now, I am going to sit outside and listen to the birds, get some much-needed rest after yesterday’s uber stressful day and be grateful for the now.

-A

P.S. Even though I am not a huge fan of Cesar Millan’s dog training techniques I do love this quote from him:

“Dogs live in the moment. They don’t regret the past or worry about the future. If we can learn to appreciate and focus on what’s happening in the here and now, we’ll experience a richness of living that other members of the animal kingdom enjoy.” – Cesar Millan

 

 

MRI aka: Menacing, roaring, instrument!

So, today was my second MRI in the last six months. I will be honest I was really anxious about this one. Since my diagnosis in November I have started experiencing some new symptoms as well as a few persistent old ones sticking around. My MS Specialist and I decided it would be worth getting some updated scans done so we can make some decisions about starting a medication.

Apparently, back in November I just got a brain and upper spinal MRI (honestly the twenty four hours before/after the diagnosis are a bit of a blur from the emotion of it all) but this time my neurologist wanted to add the full spine as well as the full brain. The nurses warned me that it would be a lot longer than my first MRI and last a little over two hours. I am pretty claustrophobic and really struggle with panic attacks so I went in prepared.

I wore my most comfy sports bra with no metal in it (thank you Victorias Secret!), yoga pants, and a tank top. I meditated as soon as I woke up in the morning (at 5am because my nerves were already in full swing and anxiety LOVES company) and my MRI wasn’t until noon. It helped a bit and I ended up being able to fall back asleep for a little bit. I ended up having horrible nightmares. That is something I want to go into in another post. I have always had extremely vivid dreams and recently have been suffering from some pretty intense nightmares 😦

So after I woke up I did a little light cleaning and got my “happy place” set up for me to come back to after the MRI. This includes:

My lavender scented, weighted blanket (seriously, this thing is like a magic blanket)

A full bottle of water

Harry Potter Hogwarts Mystery all cued up on my ipad

My Himalayan Salt Rock Lamp for a warm healing glow in the room

My favorite pillow, recliner, and some more blankets. I’m kind of a blanket freak…

I was set for the post MRI de-stress so I did another 35 minute meditation to center myself and check in with all the areas of my body I was feeling stress. I use an app called Insight Timer that has thousands of guided meditations for all sorts of situations so I was able to find something that helps to calm yourself while still staying alert and not falling asleep! I really think that helped me for my pre-MRI jitters.

Funny side note: On the drive to the hospital my husband and I passed a middle school and saw bunch of kids doing the “1 mile run” around a field. Remember those things?!? I was HORRIBLE at them…like seriously dreaded them. I turned to my husband and said “That looks so terrible. Honestly I would rather be doing what I am about to do that run a mile right now” You fellow fatigue-ers (that’s not a word, now it is) know what I am talking about!

The MRI started out really well! I took my sedatives prescribed by my doctor, had on a Taylor Swift Pandora station and did a bit of meditation as soon as I got in the machine to calm my nerves and stomach. I felt really relaxed and one of my MS power songs “Fight Song” by Rachel Platten came on so I was really feeling like a badass woman at that point.

But about an hour and fifteen minutes I think the sedatives started to wear off and anxiety started to rear her ugly head again. My head was killing me and I started having a panic attack about the time they gave me the contrast. I knew I was about 3/4 of the way done and REALLY just wanted to get it over with. So I laid there and I cried and tried my hardest not to move. I just didn’t want to hit my panic button and have to start the scan over. I tried to just focus on my breathing and kept reminding myself that this would be over soon…and it was.

When the nurse pulled me out and saw I was crying he was shocked and said that for someone who really didn’t want to be inside that machine I did really well and didn’t move at all. So at least that is something to be proud of. I powered through and even though I was scared I proved to myself that I CAN do it. It might take some tears and a weak moment or two but I WILL get through this.

I wish anyone who is dealing with medical procedures today peace, good vibes and relaxation.

We are all in this together and we have a support system in each other.

 

 

Let’s talk about ANXIETY

Anxiety is something I have struggled with long before my diagnosis of MS. I was lucky to have a mom who noticed the symptoms and could see I was suffering even when I was as young as fourteen. My anxiety began to manifest when I as in middle school in the form of hypochondria. I was ALWAYS afraid of getting sick. I’m talking no sharing food/drinks, constantly washing hands, sanitizing my toys, and barricading myself in my room when one of siblings got sick. Growing up, my bedroom was the guest bedroom (I was the lucky kid who got the queen sized bed in her room, but that also came with cost of giving up my room when extended family from out of town came to visit). I can remember just crying with fear every time I knew someone else would be sleeping in my room because HOW in god’s green earth was I going to GET RID OF ALL THOSE GERMS!?!

I saw a doctor and we talked about what I was experiencing and I was put on an anxiety medication and things got a lot better for a while! Unfortunately when I was in high school I experienced abuse from an older boy and almost lost myself to his dark influence and hurtful behavior. Luckily, (again!) I have some pretty rad parents who devoted their lives to making sure I got away from him and found a place where I was happy and safe (as happy as kid can be when going through that kind of abuse at the ripe young age of fifteen) and have since been getting the mental health treatment I needed.

About a year ago my anxiety got much, much worse than it ever had been. I had recently moved back to Minnesota from Chicago and was not adjusting well. My (then) boyfriend (now) husband and I decided it was time for me to start seeking regular mental health treatment again. I was diagnosed with PTSD from sexual and emotional trauma, Generalized Anxiety Disorder, and Panic Attack disorder. I have been working with a wonderful psychiatrist who has helped me find meds that work for me and is helping me find techniques to deal with my frequent panic attacks.

Then November came…and along with it my diagnosis of Multiple Sclerosis. My anxiety has gone through the roof. It’s almost like the diagnosis snapped me back to being a child again. I have started feeling that familiar and horrible overwhelming feeling of being afraid of everything that could make me sick. Ironic isn’t it? The hypochondriac child gets sick as an adult with something you can’t get better from?

How does your anxiety manifest itself? Since my diagnosis I have been experiencing a whirlwind of emotions but anxiety and fear are definitely in the forefront. At first I was having severe panic attacks on almost a daily basis (I am now down to one or two a week- THANK YOU MEDITATION and Xanax for during the worst of the attacks). I’ve noticed that my anxiety manifests in nausea, vomiting, scratching, Insomnia, rapid obsessive thoughts, racing heart, flushing, shortness of breath, sudden feelings of intense doom aaaaand cue panic attack…

What do you guys do to help with your anxiety? Besides seeking help from a medical  professional ( we need to take our mental health just as seriously as our physical health and that means there is NO SHAME in going to a mental health provider. You wouldn’t be ashamed to go to the doctor if you got pneumonia? Right!?!)

I am currently seeing my psychiatrist for medication management and a phycologist specializing in helping those diagnosed with chronic or terminal illness. Both of these people have helped me TREMENDOUSLY in understanding and accepting my anxiety and how to get control of it rather than letting it control me. I still have a lot of work to go though.

My go to home remedies for when I am having a challenging day are:

• Walks with my dog (seriously I swear he can tell when I am having a rough day)
• Meditation and Mindfullness exercises
• Drinking calming Herbal Tea
• Use of calming essential oils like Lavender
• Taking a nap (sometimes when I am over fatigued my anxiety takes that as a chance to rear her ugly head)
• Cleaning and organizing my house (I have no idea why it helps but it does)
• Listening to music. It can be calming music or just my favorite uplifting playlist.
• Writing this blog! It’s actually one of the big reason I started this blog. I have always loved a creative resource!

So people…give it to me! I want to hear what you find empowering, comforting and helpful when anxiety gets the best of you!

-A