My healing comes in steady waves.
So inconspicuous it could go unnoticed if one wasn’t aware.
Like the second hand on an old clock
I tick slowly on, in minute and determined movements.
The forward movement is so small it could go unnoticed by the naked eye.
Until you glance away, and back again, and see how far I have already come.
I have been a bit MIA the past couple of months when it comes to writing. It took me a while to decide that I wanted to share what was going on with me and has taken me even longer to figure out how to put it into words.
If you know me personally or have read any of my other works, you know that anxiety and mental health issues are something I have dealt with ever since I was a young teenager. Over the years I have gone to many therapists, tried many different medications, read many books, done countless meditations, and tried homeopathic remedies to try and “fix” my anxiety.
After my diagnosis of Multiple Sclerosis about a year ago my anxiety really began to spiral out of control. What once was a small voice of worry in the back of my mind became a deafening roar that echoed violently off of the inside of my skull. Every day I felt like I was at war with my own mind. I was exhausted, I was losing hope, and I was scared.
About a month ago I started an intensive outpatient therapy program (meaning I go to treatment for 7 hours each day but go back home after treatment each evening) to finally address both my PTSD and anxiety. It was a difficult step to take, but one I knew was important for my mental health.
The treatment I am going through is called Prolonged Exposure Therapy (PE). PE has two parts to it:Imaginal Exposure- revisiting your traumatic event in detail with a therapist, speaking in the present tense, and then discussing and processing the imaginal exposure and your emotions etc. afterwards with the therapist.
The second part is In Vivo exposures. This means “in real life”. These exposures are confronting your fears both during programing and at home after programing each day. You work with your therapist to develop a range of all of your possible feared stimuli or situations (related to PTSD or another disorder, so it could be specific places, people or things that remind you of your trauma and cause panic and anxiety or trigger you in some way) and create a challenging but doable exercise to do repeatedly day after day, until it no longer causes you anxiety.
This process is called habituation and it is the gradual process of becoming accustomed to safe but uncomfortable situations that we once perceived as scary or dangerous. Once you habituate to a once feared stimuli you move on to the next thing on your fear hierarchy.
I am attending a program that focuses on Prolonged Exposure Therapy as well as Cognitive BehavioralTherapy (CBT), Dialectical Behavior Therapy (DBT), Experiential Therapy(ET) and medication management.
This treatment has been one of the most exhausting, terrifying, empowering, healing, and intense experiences of my life. I am not going to lie and say it’s easy, but I will say it works.
It’s hard. I mean really, really hard, but it is so worth it in the long run. Beginning to free myself from the heavy weights of anxiety and panic that I have been dragging around for so long is so invigorating!
It is both intimidating and self-empowering to wake up every day and face my biggest fears. To look my demons in the eye and tell them to fuck off. To learn to trust and love my own mind again.
I didn’t write for a while as I started this treatment program. Writing is very emotional for me and when I write a lot of my heart pours out onto the pages. I wasn’t ready to write in the beginning of treatment. I just had too many thoughts, fears, anxieties, and emotions to even begin to put them into words, let alone share them with anyone but my therapist.
But then one day I picked up a pen and wrote something that sort of encompasses what I have learned so far from this program and what I am continuing to learn and work on every single day. A Poem entitled : The Wave.
It took a while, but I have finally started to feel like myself again.
For anyone dealing with mental health issues or trauma, I know what you’re feeling. I know how scary, and lonely, and exhausting it can be to fight with your own thoughts every day. I know how far away happiness can feel at times, and I know that it may seem like there is no light at the end of the tunnel.
But this is a gentle reminder that there is.
That you are not alone. That you are strong, even if you feel broken. It’s ok to feel what you are feeling, whatever it may be! Your emotions are valid and none of them are “bad”. Be accepting of your emotions and thoughts, but you don’t have to let them control your actions. You get to do that!
It felt important to share this with you all because too often people find themselves ashamed to admit they are struggling with a mental health issue. Once we start looking, however, we will realize that there are so many people out there who are feeling the same things as you are. Take comfort in knowing that we are all human and we all experience both good and bad in our lives. You are not alone, you are not “sick” and you are not crazy.
You are grounded. You are loved. And you are enough.
-A
This morning I woke up for the fourth day in a row with limited (VERY limited/borderline no) feeling in my right leg. I’ve also been having increased tingling in my right foot, and some weird hearing issues. And lastly, muscle spasms and tremors in my right leg. In the past I have had issues with my right leg losing feeling, but it came back after two rounds of steroid infusion therapy.
I know that this could just be a pseudo relapse due to stress (seeing as most of the symptoms are in a leg that has had issues before makes me think this is likely?) but it scares me nonetheless. It still means that something is wrong. It means that inside my brain there are parts that are dying, being eaten away at by my own immune system.
I have reached out to my neurologist and I am waiting to hear back about what he wants to do about this flare of symptoms.
Today has been a rough day. It’s so hard to explain what it feels like to know there is something wrong inside of you.
It’s so hard to trust your own body and listen to the strange sensations we feel with MS when there are people around you suggesting that it is “just your anxiety” or all in your head. I am still learning how to trust my body, something that is SO important with a disease like MS. God, it’s still weird to say sometimes, disease.
I am the one living in this body, I am the one who knows when something doesn’t feel right. I have lived long enough with anxiety to know when it is wreaking havoc in my body..and when it is not. When it is something else. So I need to trust what I know.
It sucks to have to miss out on things and have to stay inside and rest when my heart and mind still want to be out having adventures. It is unsettling to have a mind and body that are on completely different pages sometimes. I am not choosing to be sick. I am still learning how to accept that some things, like having this disease, are out of my control.
If any of you have someone who is struggling, who is sick, or who just are having a rough day today, give them a hug. Or shoot them a text reminding them they are a badass mother****** and that you love them! We all can use a little pick me up some days.
“Without a little lift, the ballerina falls.” – Next To Normal
So this is for you, yes YOU. The anxious ones, the sick ones, the overworked ones, the black sheep, the depressed ones, the frightened ones, the lonely ones. YOU ARE BEAUTIFUL. YOU ARE STRONG. YOU ARE EXACTLY WHERE YOU ARE MEANT TO BE 💕 Keep on that fight, you courageous warriors!!
With a heart full of hope – A
I have been thinking a lot lately about the link between childhood trauma and stress related disorders (post traumatic stress disorder, obsessive compulsive disorder, etc) and Multiple Sclerosis.
According to numerous studies throughout the years there is significant evidence that persons who experienced childhood trauma or prolonged stress and anxiety as a child were at a remarkably higher risk for autoimmune disease. These studies are ongoing and are still working out exactly how and why this happens in the body.
Those of you who have read my story you will know that I was abused as a teen by an older man who I met through community theater. Luckily, my family fought tooth and nail for years to keep me from completely slipping away into the clutches of this monster, and eventually it paid off. I was able to make the decision to end my “relationship” with him and remove him from my life.
But those years left scars on me emotionally. I was always an anxious child and started treatment for my anxiety and depression at a young age (around 15 or 16). But after the mistreatment and trauma caused by this man my anxiety only got worse.
A few years ago I stared experiencing flashbacks, nightmares, severe levels of anxiety, panic attacks and other unpleasant symptoms. I started seeing a psychiatrist and going to regular therapy. Through this I was diagnosed with PTSD. It was only about three years later that I was diagnosed with Multiple Sclerosis.
It is somewhat amazing to think about what a powerful impact stress and trauma can have on the body, even years later. Not just emotionally, but manifesting itself into physical illnesses, and in some cases, autoimmune diseases.
When I first discovered this information I was MAD. I was mad at the man who abused me for all of those years. He took so many things from me. My childhood, my innocence, my trust, my confidence and independence and so much more. But now, to learn that years later my health is now leaving me too and it could be linked to the trauma he caused me…
But the longer I have sat with this information the more my anger has slowly ebbed away. By no means do I forgive what that man did to me. It is unforgivable and to quote my girl Kesha;
Some things only god can forgive.” – Praying, Kesha
However, I do not harbor as much anger and resentment towards him as I once did. The struggles and the pain that I endured because of him shaped me into the woman who I am today. I learned to be strong and to shape my own opinions, I learned to be true to myself because I am enough, I learned the importance and the constant love of my family, I learned that I will never let anyone control me or push me around ever again.
They were hard lessons and took me years to finally start addressing, but now that I have I have found a peace that can only be described as liberating.
I do not want to live with hate in my life. I do not want to live in the past. I do not want to live resenting someone for their crimes against me. I have a good life. Even with PTSD, Anxiety, and Multiple Sclerosis I would say I have it pretty damn good.
I have a husband who not only loves, cares, and understands me…he is my best friend too. I have a family that is my rock, always there to support me and to lean on. I have a wonderful dog who keeps me on my toes and makes me laugh every day. I have a beautiful home with my own little garden and plants and I get to share it with Sparrow Mom and her family too!
So I take this newfound information regarding my past (and how it could still be affecting my body in the present) and I am choosing to look at it not as painful reminder of things that once were, but as a positive sign for the future.
This research means that we are making progress in understanding these very mysterious diseases. And understanding is the first step towards finding a cure or a way to prevent them!
It is also a reminder of how impactful stress can be. We know that stress can trigger a relapse with Multiple Sclerosis. So now, more than ever, it is so very important for me to practice mindfulness, tackle my problems one day at a time, and take time to breathe and just relax!
No matter where you are in your life I encourage you to take a moment today to think of a few things you are grateful for, take a couple of minutes to just let yourself relax and enjoy those things, and take a few calming deep breaths. It’s a good day to let go of a little stress!
-A
Alix in Wonderland 