The Wave

It feels a thousand years ago

I started on this daunting path

With shaking hands and wild eyes,

Still picking up the broken pieces of the aftermath.

 

What had felt like an impossible feat

Has already begun to come to pass

And the healing that seemed so far away 

Came like a wave crashing over me so fast.

 

Once I accepted where I was 

And stopped trying to control the entire game

I found that were I was, was enough 

And my life was waiting there for me to come reclaim.

 

The part of me that’s hurt is still there

It just doesn’t sting so bad.

I’ve learned to trust myself again,

A self-love I’ve never had. 

 

The fear still creeps up on me

every now and then,

It’s breath hot and sticky

breathing down upon my neck 

 

But instead of curling up to hide 

I look that fear right in the eye, 

And tell it to back right off

Because I get to decide.

 

What is scary, what is dangerous,

What’s worth the adventure and the risk.

That anything life throws at me 

Together my heart and mind can fix.

 

It’s a very scary war to wage,

The one inside your head.

It takes a special kind of brave to speak of your demons

To utter words that long have gone unsaid.

 

Anxiety, OCD, Depression

and so much more.

Just the tip of an iceberg of issues

That the world’s learned to ignore.

 

It’s time we change the stigma, shed a little light.

Mental illness does not make you weak.

It makes you very strong.

And it takes a very brave soul

to ask for help when things go wrong.

 

 

So, the woman who feels hopeless,

Or the man who feels so lost but is afraid to say

Are nothing short of warriors

Donning armor and walking into battle every day.

 

 

So, when you feel the weight crushing down upon your chest,

Remember both the bad and good are but fleeting states at best.

You will learn to cherish every emotion your heart has had and each lesson that life gave,

Once you take a risk to swim and learn to love to ride the wave.

5 Types of Anxiety Disorders

Chances are good that you or someone who you love has experienced some form of clinical anxiety in their lifetime. Anxiety is a completely normal and healthy feeling that all of us feel at one point or another. But having an anxiety disorder is a lot more than just feeling nervous.

I’ve decided to write about five major types of anxiety disorders. Someone with anxiety can have one, two, three or all of them at once! There are more that I will not discuss today, but that does not mean they are not out there!

Just because you have one Anxiety Disorder does not mean that you can’t have another, in fact many of these disorders kind of bleed into the next so it is not uncommon to develop more than one anxiety disorder.

Think of Anxiety Disorders as an umbrella, and all of these different disorders fall under the same umbrella.

Generalized Anxiety Disorder (GAD): Generalized Anxiety is often described as being in a constant state of worry and feeling of doom or dread that something bad is going to happen. However, oftentimes (not always) people with GAD have a hard time pin pointing exactly what it is they are anxious about, it is more of a constant state of general unease.

Obsessive-Compulsive Disorder (OCD): Obsessive-Compulsive Disorder is characterized by  repetitive, unwanted thoughts (the obsessive part) and the need to perform repeated tasks or behaviors (the compulsive part). These compulsions can oftentimes become ritualistic in nature, done to temporarily ease the symptoms of intense anxiety and bring a short period of comfort to the person. The term “OCD” get’s thrown around very casually in our current society.

People love to say “Oh my god, I organized my entire closet by color. I am SO OCD!”  or “You like to clean your house every other day? You must be OCD!”

The truth is statements like that stigmatize and romanticize OCD. A disorder that is anything but “cute” and “funny”. Only those truly fighting the heavy shackles of  Obsessive-Compulsive Disorder know how serious and horrible this disorder really can be. Anyone who truly has OCD would never make an offhanded comment or joke about it.

OCD is not organizing your pens by shade, or sweeping your house every day. OCD is having to get up ten times an hour to check that the oven is off, so that you don’t burn down your house and kill your entire family. Or the guy whose hands are red and raw because he has washed them 37 time already today, but still has to open doors with his sleeves covering his hands. OCD is being completely aware that your thoughts and actions are irrational and not actually helpful to your anxiety, but you have.to.do.it.anyways.

Panic Disorder: Panic disorder is defined as someone who has had (is having) multiple unexpected or repeating episodes of severe anxiety accompanied by; feeling of doom or dread, intense fear of dying, heart palpitations, shortness of breath, shaking, sweating, fear of “going crazy”, nausea, dizziness, numbness and a general feeling that something horrible is going to happen.

Panic attacks are very scary, anyone who has had one (and most people do, unfortunately, at some point of their lives) knows that in the moment it can feel like a near impossible task to overcome the feeling. When people who are having a panic attack say they feel like they are dying, or about to pass out it’s because they truly feel that way.

When repeated panic attacks occur panic disorder can continue to intensify to the point of Agoraphobia. Agoraphobia is defined as:

“A fear of having a panic attack in a situation where it would be challenging or embarrassing to escape. This fear often leads to persistent avoidance behaviors, in which the person begins to stay away from places and situations in which they fear panic may occur. For example, some commonly avoided circumstances include driving a car, leaving the comfort of home, shopping in a mall, traveling by airplane, or simply being in a crowded area.”

Post Traumatic Stress Disorder (PTSD): PTSD is an anxiety disorder that develops when someone experiences a shocking, dangerous, scary or terrifying event. Oftentimes people associate PTSD with soldiers and those who have seen combat. This is a very common and serious cause of PTSD, but not the only one.

PTSD can be caused by things like sexual assault, a car accident, witnessing or being the victim of violence or crime and more. Most people will experience trauma in their lives and recover from it in a healthy way over time. When healthy recovery does not happen PTSD can develop. PTSD is characterized by having all of the following symptoms at least once a month after your trauma:

• Revisiting the Trauma – this could be through intrusive thoughts, flashbacks and nightmares.
• Avoidance Behaviors – this could be avoiding the actual place of trauma, memories or talking about the trauma, or even things that remind the person of trauma.
• Aroused Reactivity – Being easily startled or always on edge, difficulty sleeping, and irritability or angry outbursts.
• Cognition Symptoms – Loss of interest in pleasurable activities, feelings of guilt or depression, distorted thoughts, trouble remembering details about the event or trauma (blacked out memories)

 

Social Phobia (previously known as social anxiety): Social Phobia is an intense fear and sense of self-consciousness in social settings. The intensity of social anxiety can vary from person to person. One person with Social Phobia may be fine in a social setting, as long as they don’t have to speak in front of the group. Another person diagnosed with Social Phobia may have issues even leaving their house due to the overwhelming fear of interacting with others.

The good news is that all of these anxiety disorders are treatable with the use of therapy and medication management. Many times anxiety disorders will require both to be fully and effectively treated.

Cognitive Behavioral Therapy (CBT) is one of the most widely proven treatment options of Anxiety Disorders. When participating in CBT you work with a licensed therapist to identify, address, and change distorted and destructive thinking and behaviors. You work to improve emotional regulation and develop, with your therapist, healthy coping techniques to use throughout your life, because unfortunately you cannot cure anxiety, but you CAN learn to control it!

I hope that this information helped you better understand that when someone tells you they have an Anxiety Disorder they aren’t telling you they are simply feeling nervous or anxious. There is so much more that they are dealing with under the surface.

If you or a loved one has one of these disorders I encourage you to educate yourself (using a reputable source, of course) on the anxiety disorder further. Education is power!

Be patient and kind with one another, you never know what demons someone may be fighting.

And for the warriors currently in their own battles with an Anxiety Disorder, you are STRONG. You are NOT ALONE. And things WILL GET BETTER. Keep fighting warriors!

-A

Are You Haunted?

When I was growing up I was always so afraid of the idea of being haunted. I was terrified of demons and ghosts and all of the things that go bump in the night. I avoided horror movies like the plague and a ouija board could send me running from a house like a bat out of hell.

But as I grew older I started to realize that it wasn’t the literal ghosts and ghouls that I needed to be afraid of haunting me. I stopped being so afraid of “getting haunted” when I realized that I already was.

I think we are all haunted.

We are haunted by the ghosts of our past. By the things we won’t let go. We are haunted by our “what if’s” and “if only’s”. But unlike most spooky stories it’s not the ghosts that need to move on, it’s us.

I am learning that it is good to remember your past. It is good to learn from your mistakes and remember the moments that made us strong.

But not if they are haunting us.

At a certain point it is ok to let go. To let go of the negative parts of our past. It is ok to let go of anger we have been holding onto for years. It is ok to forgive people who have wronged us. It is ok to let go of your ghosts and slowly let them fade away. It is ok to acknowledge that your past made you the person you are today, but it does not necessarily define your future.

The past does not necessarily set the tone for your entire life. You do! Hold onto the happy and let go of the bad.

I hope that everyone has a very happy and safe Halloween, full of positive energy and making joyful memories!

-A

Chad and I dressed as Hogwarts Students this year for Halloween! I’m only a little obsessed. 

Chad and I carved Harry Potter themed pumpkins this year! 

Fall is Here

The air is cold, it bites my skin.

And the trees have shed their leaves again.

The colors have changed from greens to reds and browns.

And my footsteps crunch on the frozen ground.

 

Children wait at bus stops, bundled up from head to toe.

The thermostat was switched from ‘air’ to ‘heat’ not that long ago.

My breath turns to an icy cloud in front of my eyes.

And not even the dog wants to go outside.

 

In the evening, the smell of campfire smoke fills the autumn air.

And summer blooms are covered, or brought safely inside with care.

The windows stay shut tight, to keep the cold away.

And the once blue skies settle into a chilly hue of grey.

 

Inside houses start to smell like spices, sweets, and cheer.

As families travel to each other, to hold their loved ones near.

And though outside, the warmth quickly disappears,

Inside our hearts are toasty warm, because fall is finally here!

 

 

 

Brave

What do you think of when you think the word ‘Brave’?

Do you think of knights or warriors or heroes in capes?

Or do you think of everyday people of all sizes and all shapes?

 

Brave is waking up each morning, willing to face the challenges of the day.

It is looking your problems in the face, but never backing down.

It is letting a smile sneak through when all your heart can do is frown.

 

Brave is walking through a valley of fear and doubt and pain.

It is silencing all of the ‘what if’s” smacking around inside your brain.

And somehow calming the restless and anxious soul and letting a racing mind unwind.

 

Brave is showing up to the doctor’s appointment

Even though you are afraid of what they might find.

It is learning to leave the demons of your past behind.

 

Brave is taking a deep breath in… and letting it out again.

Brave is admitting when you need help, that you can’t do it on your own.

It is making it through the night when it’s dark and you’re all alone.

 

Brave is smiling through the tears that are streaming down your face.

And cracking jokes in hospital rooms to ease your loved one’s fear.

Brave is accepting words of help, even when it’s not what you want to hear.

 

Brave is pulling yourself back up to standing, after you’ve taken your hundredth fall.

It is not beating yourself up for the times you showed your pain.

Brave does not mean that you are not scared, that your heart does not race,

and your hands don’t shake, they do.

 

Brave is feeling all of the fear and stepping forward anyways.

Brave is one foot in front of the other, one step at a time.

Brave is being patient for the change you need, trusting that the stars will align.

 

Brave can look at you with fear in her eyes, a quiver in her voice.

Brave can break down and be a monstrous mess

But brave knows that eventually, life will coalesce.

 

Brave is the woman at the clinic, or the man who limps slowly down the street.

Brave is the family in the waiting room, or the patient in the bed.

Brave is the battles we have won in the past, and the ones that lay ahead.

 

Brave is falling into bed after a hellish kind of day.

And telling yourself that even though it was so hard, it’s going to be ok.

Braving is reminding yourself that tomorrow is a brand new day.

 

Brave doesn’t always shock and awe.

Brave can be quite simple and quite small.

And sometimes those little tiny steps are the bravest of them all.

-A

A Perfect Storm

The past two weeks have been rough. Very rough. It’s taken me a while to even work up the courage to write this post.

Two weeks ago I started feeling really crummy. I came down with some sort of stomach bug. It sucked, but it was just a stomach bug, I knew it would end. A few days passed…and then a few more. Before I knew it I had been down and out for a solid week. I woke up that next morning to something that I had never experienced before. My whole body was shaking. It wasn’t just shivering, it was violent, uncontrollable shakes wracking through my entire body. I would later find out that this phenominon is called Rigors.

At first my husband and I thought I was just cold. We cranked up the heat, layered clothes onto me, and piled on the blankets. But the shaking just continued. In fact, it got worse. The next day I emailed my doctor asking for advice. I’ve had chills before when I have had the flu, but never like that. My doctor suggested that I be seen that day.

I went in, got some meds. They did some tests and assured me that I had an infection and with some antibiotics I would be fine. Fast forward two days and I could barely walk anymore. My body was exhausted, I was exhausted, and to be honest, I was scared. Really scared.

I ended up spending the day in ER getting fluids and more tests than I could count. Again, they ruled out everything (this time also ruling out an infection, and advising me to stop taking the antibiotics). My heart rate was high, and I was running fever so the ER doc gave me the option of going home and trying to rest, or being admitted overnight for observation. I chose to go home, and try to get some sleep. I felt like that was what my body was needing the most. Looking back, I wish I had stayed.

Two days later I was back in the ER for more fluids and tests. This time I was put on a drug combination of Reglan and Benadryl. The Reglan to help with nausea, the Benadryl to help counteract the side effects of the Reglan. I was so tired of being sick at this point, that I didn’t even question what these side effects could be.

“Reglan can make you a little restless.” The doctor had said.

Well, it did. But it was manageable for the first day. I felt uncomfortably wired, but the Benadryl took the edge off. But that night I barely slept. I had the worst Insomnia of my life. The next morning it only got worse.

I started feeling incredibly anxious. I didn’t feel like myself at all. I could feel every racing beat of my heart pounding against my ribcage and rattling my entire chest. I couldn’t focus on anything, I couldn’t stop moving. I felt like I was dying.

It turns out I was having a severe adverse reaction to the Reglan. My heart rate continued to run high and my body was going completely haywire. It was worse than anything I have ever felt, including from Steroid Infusion Therapy, which anyone who has had done can tell you is not a ride in the park.

I was scared before, now I was terrified.

I ended up being admitted to the hospital due to the extreme adverse reaction to Reglan. Luckily I was able to go home the next day. It’s been four days since I last took the Reglan (and I only took it for one day) and I am still having waves of extreme anxiety and racing heart, although less frequently and intense each day.

It turns out this is not an unheard of reaction to the drug. Although uncommon, it can cause this type of response in some people. My chart now has Reglan listed under my drug allergies.

These past two weeks are a blur of pain, fear, stress, anxiety and tears. I’m having a hard time moving past these painful memories. I know that it is in the past, and that I will never take that drug again so I will never have that reaction to it again, but I am still scared.

It is hard to admit that I am shaken, that I wasn’t able to just bounce right back like I usually do. It’s not easy to talk about things that caused such pain. And it is definitely not easy to look this kind of anxiety in the face and tell it to fuck off.

But admitting I am scared is nothing to be ashamed of as long I don’t give up. As long as I keep my head up and keep moving forward. As hard as the past two weeks have been, I did make it through.

I proved to myself that my body and my mind are strong. No, they are not perfect. But they can take a few punches and stand up again. I might not stand up gracefully, or quickly but I will  stand.

So with shaking hands, but a determined heart I look forward to a new week full of smiles, healing, positivity and growth.

-A

 

Word Mental Health Day

October 10th is World Mental Health Day. I talk a lot about mental health on my blog. I have been affected by mental illness since I was a teenager. Growing up, my parents were very open about mental health and, having experienced anxiety and depression first hand, were able to recognize when I started exhibiting signs of anxiety and depression when I was around fifteen years old.

I have come to realize that not everyone grows up in an environment where mental health is talked about in a very open and honest way. There are many people out there who have no idea that they are not alone in feelings of sadness, or fear or hopelessness. People who have no idea that there is a whole network of people out there dedicated to helping those with mental health issues and getting them to a place where they can enjoy their lives again. Today is about shedding light on mental health and ending the stigma that seeking help for your mental health issues is something to be ashamed of.

One thing I have noticed that concerns me is the trend of “pill shaming”. The idea that there is something wrong with people if they are taking medication to help manage their mental health. If you had a physical illness and there was a medication available to you that would make you feel better would you stop for one second to wonder “what will people think if I take this medication?”…nope! You would take the meds, and get better! So there is no shame in seeking help from a medical professional if you suspect that you are struggling from anxiety or depression. They are there to help you, and they can help.

Now, I am not saying that there is a magical pill out there that will just cure your anxiety or your depression. There are many tools that I have added to my proverbial tool belt to help me combat my anxiety problems. To name a few; Meditation, Self Care, Writing (my personal writing as well as blogging), Eating Healthy, Counseling, Regular Exercise

One of the techniques that has helped me the most, not just during panic attacks, but also during physical discomfort from MS, illness, etc. is meditation.

I was recently watching an episode of “In Search Of” hosted by Zachary Quinto and they were searching for the answers to how some people are able to exhibit super human strength or feats during periods of meditation.

He was specifically looking at a Shaolin warrior monk who through meditation, is able to complete tasks that would usually leave a human seriously injured. However this monk walks away with not even a scratch to be seen. For example, in this episode the Shaolin warrior monk breaks a wooden staff* over his head. He never loses consciousness, finches, and claims to feel no pain whatsoever!

*** No matter how good you are at meditation I am NOT recommending you do this…unless you are a Shaolin warrior monk…then I guess go ahead.

In search of (haha get it?) an answer as to how this monk is able to endure these superhuman feats Zachary, the monk, and one other person conduct an experiment where they took two MRI scans of their brains. The first scan was a regular scan, but during the second scan the men were asked to put their hand in extremely cold ice water. They were specifically looking for the area of the brain that recognizes pain to light up.

As suspected, when Zachary Quinto put his hand into the ice water his scan showed the pain receptor area of his brain lighting up like a Christmas tree. But when the monk did this same test, while meditating and centering himself into a place a of tranquility, his scan showed extremely limited activity in the pain receptor area of the brain!

Even more interesting, Zachary went into the MRI machine one more time to test just how successful he could be at lowering his pain level through meditation. His scan, while meditating, noted a significant decrease in activity in the pain center of the brain.

Even the doctor who was helping them conduct this tests were baffled at how affective meditation was at physically changing the way our bodies received and reacted to pain!

I have not been feeling great with a stomach bug the past few days and I have found meditation extremely helpful to help ease my discomfort. Sometimes, if your discomfort is too high to even concentrate on a full meditation even just focusing on your breathing can help. “In…two…three…four…out…two…three…for”. That phrase has gotten me through many a tough moment over the past year.

So today if you are struggling with a battle against mental illness, or if you know someone who is, let us all remember that there is always hope, there is always light, and there is an army of people around you (including me!) that are cheering you on and supporting you every step of your journey!

Let’s share some positive vibes today.

-A

 

 

 

🤧

I have been a terrible blogger the past couple of weeks. As in…I have not blogged.

I have been sick for over a week now with some sort of cold. Before MS a cold was no fun and made me feel like crap, but I feel like after a couple of days I would bounce back and just have a stuffy nose or other minor symptoms. That is NOT the case with this cold. I have been feeling solidly ill for the entire week.

Fellow MS’ers, have you experienced an increase of severity in your cold/flu symptoms since your diagnoses? Other than loading up on meds, what are your tips and tricks for when you are “down and out” due to illness?

I have been meaning to write a blog post every day this week, but I have just been so fatigued I haven’t been able to write much at all, let alone anything to post! I am hoping to bounce back from this sickness soon and I will think of something really special to write about!

I just wanted to check in with all of my friends on the blogosphere and wish you all a happy Monday.

I hope you are all staying warm (for my fellow northerners) and cozy today!

 

🤒 – A

My MS Star

Last week I had the pleasure of attending my first “Taste of Generosity” silent auction and fundraiser hosted by the National Multiple Sclerosis Society.

This event not only raises money to help work towards finding a cure for Multiple Sclerosis (MS), it also is a chance to honor MS Stars in our community. An MS Star is someone who has made an impact on the MS community in some way.

When I first heard about this event I knew that I had to nominate someone who has been a super nova of a shining star in my life since my diagnosis of Multiple Sclerosis last fall. My husband.

It was a wonderful evening spent with family and folks from all around the twin cities, joined together for one cause; find a cure for Multiple Sclerosis.

We clean up pretty nice! 

Thank you to all of those who continue to support me on my MS journey through your prayers, words of support and love! You all lift me up, more than you know!

My amazing MS fundraiser T-Shirt quilt we won at the silent auction. Talk about wrapping myself up in comfort! Mac likes it too…